Help needed from Government
I am new to this so apologize if I am posting under the wrong topic but am attaching an email written by our daughter-in-law and her father asking for assistance The emails are self explanatory but would appreciate it any members could see their way to assist by signing the petition
Sent: Friday, June 04, 2010 2:19 PM
Subject: FW: We need your help!
To all of my friends and family.
Please read Dad’s comments below and I beg you to follow the link to sign this very important and life-saving petition for my brother-in-law, Mark. Every signature counts and I promise, it takes less than 1 minute to do.
I would also appreciate it if you could forward this email to others in your address book. We need all the support we can get!
Subject: We need your help!
Mark Filmer is my son-in-law and Mark suffers from the potentially fatal disease (PNH) Paroxysmal Nocturnal Hemoglobinuria, and we are lobbying our Australian Government to provide Mark and the other 69 Australian sufferers with the basic drug funding that every other Australian gets on life saving drugs.
Our Government has decided not to provide the subsidy for “Soliris” the drug that Mark is so dependent on, and at a cost of $20,000 per month ... each month it’s prohibitive and out of reach of most people I know. This means that 1 in 3 of the Australian sufferers will die within 5 years........and Mark could be one of those.
My daughter Jasmine doesn’t want to lose her husband and Max (6) and Tess (2) don’t want to lose their father! Mark’s life and the lives of 69 other Australians are now in the hands of our Government and we are lobbying through a petition, and we ask you for your support by following the link to sign the petition.
Together we can move our Government to save these young Australian’s lives, and today, Mark’s story is front page of “The Ballarat Courier” and it will be in the Herald Sun on Sunday. Everyone is outraged because why should these 70 Australians be treated any different to any other Australian with an illness?
Please sign the petition and forward the link on to others if you could: http://www.gopetition.com/online/36580.html
The Ballarat Courier article: http://www.thecourier.com.au/news/local/news/news-features/father-fights-for-access-to-lifesaving-dru g/1849321.aspx?page=2
Please help us