Help me help my mum
[b]Q. [/b]Pauline
My mother is no longer able to live on her own but she won't accept any help. She has difficulty remembering things, like switching off the stove, taking her medication and where she puts things. She has also started "hiding" money around the house and I'm sure she has much more lying around than she needs. As my brother lives in Perth and my mother and I live nearby each other in NSW, the burden of looking after her falls on me. I work full-time, have a family and am tired with having to pop in and check on her all the time.
I have tried to broach the subject of getting help or of her moving into an aged care facility but she flatly refuses. She says she doesn't trust a stranger to come into her home and she would miss her friends who are around her. She still gets out and about but I am worried she will fall or forget her way home.
The strain is starting to take its toll, my family don't understand why I am taking on the role of my mother's carer and my own health is starting to suffer. Please help!
[b]A.[/b]
Pauline, I feel for you. As the granddaughter of a fairly stubborn and cantankerous woman, I know this is a very difficult subject to broach.
Firstly Pauline, it’s important to make sure you’re looking after yourself. There is no point in running yourself ragged and ending up sick or suffering from depression - that will help no-one. Make an appointment with your GP and discuss any physical and emotional issues that you feel are starting to have an adverse effect on your life. Your GP will be able to suggest a course of action – one that will probably involve support from outside the family.
Secondly, it will help if you call a family meeting to explain the situation calmly and rationally. When you’re tired and it’s difficult to see an end to things, you may get emotional and even though you think your family knows what’s going on, you may not have actually explained how you feel or what you need from them.
Next, you need practical help. As you look after your mother on a daily basis, in her own home, you may qualify for a Carer Allowance from Centrelink. Now, we know money isn’t the answer to everything but it may enable you to get a little extra help at home, which will ease at least some of your burden. Currently, the rate of Carer Allowance is $101.50 per fortnight, with an annual carer supplement of $600 paid on 1 July each year. You can find out more about how to apply for the Carer Allowance by visiting http://www.centrelink.gov.au/internet/internet.nsf/payments/carer_allow_adult.htm.
Now, it’s time to talk about your brother. How aware is he of the situation with your mother. Have you explained to him that there is need to address your mother’s care options? You do not say what position he is in, he may live in Perth but is he able to travel? Or is he able to have your mother to stay for a while? Even a few days would give you some much needed respite, would enable him to assess the situation for himself and may give your mother a little boost of her own.
Sometimes we take on the burden of care for a loved one because we feel we should, but we can be prone to creating martyrs of ourselves without good reason. You must also remember that this is a frightening time for your mother; she will be aware that she’s not able to do the things she used to. She may also be aware that she’s becoming forgetful and may feel as though she is becoming a burden to you. Your mother is no doubt a proud woman and may find it difficult to accept that she is no longer the strong, powerful and capable person she once was.
Having said that, if she is becoming more forgetful and frail, then this needs to be addressed with her GP. Make an appointment to see the GP - without your mother - and explain your concerns. If he or she is in regular contact with her, they may have noticed changes in her behaviour or health. They can then arrange for her to be visited in her own home for assessment purposes and this will help you get a better understanding of what care is needed.
Understanding what help is available to you and your mother will enable you to give consideration to which aspects of her care you think you think you are capable of doing and which aspects can be done by someone else. By having a clear picture in your own mind, you will be much better placed to explain this to your mother. Commonwealth Respite and Carelink Centres are information centres located within a community which offer support to older people and those who care for them. Being community-based, they will be aware of which services are in the area that you and your mother can access. It may be Meals-on-Wheels, help around the house or community groups with which she can become involved. –Some or all of these initiatives can give her a sense of worth that she may currently be lacking. You can find out where your nearest Commonwealth Respite and Carelink Centre is by visiting http://www9.health.gov.au/ccsd/.
Once you have gathered all the information comes the tricky part of broaching the subject with your mother. Firstly, take a look at your relationship with her. As a busy working mum yourself, you probably pop in on your way to and from work, do what you need to do before you have to rush off. This isn’t a critism and is perfectly understandable, but in all the rush to get thing done, you may have lost sight of the fact that this is your mother and your relationship with her is important. Try to spend time with her as mother and daughter, take her out, read to her, spend time with her and her friends. By observing her in her own environment, when things are less stressful, you should be able to help her develop a sense of trust and openness and bringing up the topic will be more natural and easier for her to accept.
There is no easy answer to your predicament but hopefully you now have the tools and information to get things on track and find the solution that works for you both. As well as those organisations listed above, there are details of a few more below that you may wish to consider contacting.
Good luck Pauline. The requirements and demands of ageing parents are never straightforward, but this challenge also sometimes presents an opportunity for a closer, yet different, relationship; one that may ultimately prove the most rewarding of all.
Alzheimer’s Australia - www.alzheimers.org.au
Beyond Blue – www.beyondblue.org.au
Carers Australia – www.carersaustralia.com.au
Families Australia - www.familiesaustralia.org.au
Relationships Australia - www.relationships.com.au